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KMID : 0856920110140020101
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Journal of Hospice and Palliative Care
2011 Volume.14 No. 2 p.101 ~ p.109
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Quality Indicators of End-of-Life Cancer Care from the Family Members’ Perspective in Korea
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Kim Hyo-Min
Youn Chang-Ho
Ko Hae-Jin
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Abstract
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Purpose: The Assessing Care Of Vulnerable Elders project has developed indicators for the quality of the end-of-life (EOL) care. However, family members of cancer patients may have a different view on the quality indicators (QIs) established by health care experts. We evaluated the QIs from the family members’ perspective.
Methods: The information used in this study was gathered by surveying family members of cancer patients who were admitted to the inpatient hospice ward in Korea. A cross-sectional anonymous questionnaire was distributed to 120 potential respondents from July to October 2009. We included 69 responses in this study (effective response rate, 57.5%). Statistical analysis was performed by using SPSS for Win ver. 14.0, with independent t-test and Pearson’s chi-square test.
Results: Among QIs for good hospice care, families agreed the most on "Medical examination by the palliative care team or specialist" (88.4%) and "Dying in the family’s presence" (88.4%). They agreed the least on "Discussing cardiopulmonary resuscitation with patients" (15.9%). Among QIs for bad hospice care, "Occurrence of fall or pressure ulcer are undesirable" showed the highest agreement rate (94.2%). The lowest agreement rate was 11.6% on "Dying in the hospital is undesirable." In addition, women, patients who were aware of their prognoses, and people with a high socioeconomic status tended to agree more on the QIs.
Conclusion: Patients’ families did not agree on some of the QIs recommended by previous studies. Family members’ characteristics were related to their opinions on QIs.
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KEYWORD
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Health care quality indicators, Terminal care, Attitude to death
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